The Saga Continues  

rm_rsp54 59F
892 posts
9/26/2005 7:43 am

Last Read:
2/27/2007 9:13 am

The Saga Continues

I return to the Otolaryngologist. He gives me the name of a specialist in Philadelphia. I say that I will take it into consideration.

A few days later, I make the two hour trek to the University of Pennsylvania to see the specialist. His office staff is very rude and regimental. He talks down to me, as if I am a dolt.(always liked that word!) He pulls out a schedule and trys to pin me down for a date for the operation. I murmur the sacred words "Second Opinion" He says fine, but he doubts that I will find a more capeable surgeon. I think to myself that I most certainly will find one who is more compassionate.

After several hours of digging and talking to numerous doctors, and friends who are doctors, I get the name of a highly regarded doctor at a large but rural medical center just an hour away. I'm there the next day. The moment that he entered the room, looked me in the eyes and smiled, I knew that this was the guy.

He asks if I mind if the medical photography department comes to document my case. I wonder, how unusual is this thing. He tells me not to worry. Since they only see referrals on unusual and difficult cases he has seen about 5 such cases in the past 15 years! He is patient and explains everything in detail. He realizes that I understand more than the average joe off the street. He answers all of my questions in detail. Is it malignant? Probably not, but won't know until it is removed. Why not biopsy it? It has a very intricate venous supply. If it is cut, it will bleed too much. He says that we will know much better after further testing. I am scheduled for an arteriogram the next week.

I am so nervous the day of the arteriogram that when they attach the heart monitor, my resting heart rate is 120. They give me mixture of valium and something else. Very nice indeed. I feel like i'm floating above the xray table. Nothing phases me, but yet I can still manage to answer and remember questions. I watch the dye as it moves up the arteries in my head. I can see the tumor on the monitor. It is surreal.

That afternoon, I go back to the surgeon. He does the good news/bad news deal. It's probably not malignant, and operable. The bad news is that it is in the worst possible place, wrapped around a major cranial nerve, and in the junction of two cranial arteries. Getting it out while being imperitive, will be very difficult.

What Am I getting myself into. Of course, at this point, I don't have much choice.

rm_connor696 61M
834 posts
9/26/2005 8:51 am

Good luck, is all. It's sounds like you're due for some.

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