More Details on Health Issues  

k_love36D 46F
16 posts
11/9/2005 7:22 pm

Last Read:
3/5/2006 9:27 pm

More Details on Health Issues

Here is a brief synopsis of what happened to my health.

Three and a half years ago on Feb 19,2002, to be exact, I woke up in the morning feeling like I was buried waist deep in snow. I thought it was a pinched nerve so I went to work as usual. I scheduled an appointment to see a chiropractor who referred me to a neurologist that same day. The neurologist immediately admitted me into the hospital. My head was spinning. What was going on??? Anyway I had to have a gazillion tests which confirmed it was Guillain Barre' Syndrome.
I'd never heard of GBS before but I knew it was bad because the Drs. and nurses were doing everything with such urgency. I wasn’t even allowed to leave my room.

The syndrome in a nutshell: basically your immune systems attacks itself and starts destroying all of the myelin sheath around your nerves. The myelin sheath is basically the nerves protective coating or insulation. The nerves then cannot send messages to the muscles which results in paralysis and muscle atrophy. GBS is very rare and they are not certain what causes it.

Anyway, within a week, I was completely paralyzed including my face. After 5 weeks in hospitals, and three different kinds of treatments, I finally got to go home but was completely unable to take care of myself or my kids. I couldn’t bathe myself, comb my own hair, eat, anything. I think I had every disabled assistive device created. So then became the work of speech, physical and occupational therapy. Initially, I had to practically be carried everywhere. Eventually I graduated to a wheelchair, then a walker, then a cane with braces. But we're talking hours of physcal therapy and exercise.

I've gotten all of my muscle strength back except my ankles and feet. The farthest extremities are the last to come back because you have to wait for the nerve to grow that distance. Anyway. I wear special braces to keep my feet from dropping. I'm able to drive, go out on my own, wrestle with my I never wear my braces at home anymore, just if I have to go out, and then, they're not visible with jeans. I do miss my sandals and heels and short dresses!!!

For those who are wondering, it does not affect me sexually at all, obviously not my sex drive, though when I am on top, my endurance isn’t what it used to be because of the weight it puts directly on my ankles. I’m doing exercises for that too though.

I am glad it was not worse but I still have feelings that I worked hard in school pursuing my Master's Degree and other licensures. I had an excellent career. You cannot truly appreciate paralysis until you've experienced it. The whole experience has been very traumatic and has changed me as a mother and a therapist. My life is very different now. I've always appreciated being independent and don't like having to rely on someone. I don't like being on Social Security Disability.

I have worked really hard to get stronger. My main motivation has always been my kids. As much as I regret the loss of my work, I regret the loss of time with my children 10 times more. They are my priority. They have to know that I can take care of them and I don't want them to worry about something bad happening to mommy.

Hope this didn't put you to sleep.

srchn4u2be 43M
6 posts
11/17/2005 10:41 am

WOW...I'm going through some physical issues myself...nothing to the extent you are or even truly close but it gives me hope knowing that if someone can get through that much I certainly can get through mine. I certainly wish I lived closer now cause I think it would be great to meet and chat sometime but alas I live in Des Moines and its not easy to just up and go to Omaha when I feel like it. Maybe one day I'll be over there and we can meet up. Take care and hope to talk again real soon.

toyintheattic 56M

11/18/2005 3:12 pm

I am always impressed when people over come lifes obsticles. You are a credit to motherhood. I was impresssed that your kids gave you strenghth. Thank you. toyintheattic

rm_RamRod4n4is 37M
3 posts
11/20/2005 5:40 pm

Congrats on beating your health issue. You are to BEAUTIFUL and strong to be held down by something like that. Your kids will be awsome with a mother like you

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